Understanding Huntington’s Disease

Huntington’s Disease is a neurological condition caused by the inheritance of an altered gene. The death of brain cells in certain areas of the brain results in a gradual loss of cognitive physical and emotional function. Huntington's disease is a complex and severely debilitating disease, for which there is no cure.

  • Huntington's Disease is found in every country in the world.
  • Men and women are at equal risk of inheriting the disease. 
  • The child of an affected parent has a 50 per cent chance of inheriting the gene and developing the manifestations of Huntington’s disease. 
  • In Australia over 1,800 people have HD and approximately 9,000 are at risk. 
  • The most common symptom is jerky movements of the arms and legs, known as ‘chorea’.
  • Chorea usually starts as mild twitching and gradually increases over the years.
  • Lack of coordination and a tendency to knock things over 
  • Walking difficulties 
  • Speech and swallowing difficulties. 
  • Short-term memory loss 
  • Difficulties in concentrating and making plans. 
  • Depression (around one third of people with Huntington's disease experience depression) 
  • Mood swings, apathy and aggression 


Huntingtons Disease - Health Conditions And Treatments
Huntingtons Disease Facts
Health Direct

Contact us today

Give us a call on 1800 275 753 to discuss your support needs with our Allied Health team, or send an online enquiry and we'll be in touch.

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How can CPL help?

Allied Health therapies

The most common age to be diagnosed with Huntington's Disease is between 30 - 50 years old. CPL's Allied Health can deliver a range of therapies aimed at reducing the impact of symptoms and help to maintain function and quality of life.

Support at home 

CPL can support you with day-to-day tasks, depending on your needs, from getting ready for school, university or work, right through to mealtime assistance and medication.

Independent living

CPL provides 24/7 Supported Independent Living services, and has a number of vacancies in accessible homes.

Employment and Training opportunities

There are a range of disability employment and training pathways to help people who have Huntington's Disease to re-enter or join the workforce.